DE EN
Press Contact us
Login NUM Hub login

For the‘secondary use’of data and biological samples in the context of further research projects, personal data is processed on the basis of consent or another legal basis. The General Data Protection Regulation (GDPR) grants you various rights in relation to your personal data, known as the rights of data subjects (Articles 12–23 of the GDPR). For example, you have the right to find out what data is being processed and, under certain conditions, to have its use restricted or terminated.

Please note: In exceptional cases provided for by law, these rights may be restricted if this is necessary for medical research. Whether this is permissible in individual cases is carefully assessed.

You may request information at any time regarding which personal data relating to you is stored and processed. Upon request, you may receive a copy of this data.

If any of your personal data is incorrect or incomplete, you may request that it be corrected or supplemented.

In principle, you may request that your personal data be erased. Please note: In medical research, data must continue to be retained in certain cases. This may be due to statutory retention obligations.

You may object to the further processing of your personal data. Whether, and to what extent, processing can then be discontinued depends on the specific research purpose and the legal requirements.

If you believe that your data is not being processed lawfully, you can lodge a complaint with a data protection supervisory authority.

If you have any questions regarding your participation, your personal data or your rights, you can contact your relevant centre or the study centre at any time. You will find the contact details and other ways to get in touch – such as with the relevant data protection officer – in your patient information leaflet.