The Network of University Medicine (NUM) is expanding its website to include a new information section for patients and members of the public. This section explains in accessible terms how medical research is conducted within the NUM, the role played by health data and biological samples, and the rights patients have regarding their data. The perspectives of patient representative bodies and the Ethics Coordination Unit of the NUM Methods & Biosamples Hub (NUM-MB) were taken into account during the development of the new section.
There is a particular focus on clinical trials: for the first time, an overview of all currently ongoing trials funded by the NUM offers interested parties a central point of entry into the network’s research projects and provides information on their objectives and content.
With this new section, the NUM is now specifically targeting patients and the general public with its content. This makes medical research more transparent and accessible. Clear information lays the foundation for informed decisions – for example, regarding the provision of health data and biological samples or participation in clinical trials.
The new section of the website is a first step towards opening up the NUM beyond the scientific community and will be continuously expanded. At the same time , the NUM is working on a cross-site and cross-project strategy to further develop patient involvement within the network in the long term.
As part of the expansion of the website , the overall website navigation has also been updated: the NUM’s research projects, Research Infrastructures and the subject- and organ-specific working groups (FOSA) can now be found grouped together under the ‘Research’ menu item.
Visit the new section of the website: LINK